I'm disabled.
I was born in 1970.
About a year later I was diagnosed with spinal muscular atrophy. I never
walked. I got my first wheelchair at kindergarten age, and my first power
wheelchair in sixth grade.
Yet, around 4 to 6
times per year I have to, for one reason or another, prove that I'm disabled.
Granted, I'm 5 feet
nothin', 112 pounds and sit in an electric wheelchair, but apparently that's
just anecdotal evidence… We need science!
The Good Doctor
Every couple
months I have to send my physician a form and ask him to fill it out. He has to
state that I have spinal muscular atrophy, identify the diagnosis date,
explained that my prognosis is something akin to "ain't getting better
any time soon" and sign it.
With new Medicare
regulations, the good doctor is not allowed to sign the said form without seeing me
"face-to-face" to prevent fraud. Although I'm
extraordinarily healthy, hospitalized last in 1996 for something unrelated to
my dis…
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